September 11, 2009

Rainy, rainy, rainy....

What a gloooomy day. It is drizzling here in Washington -- that kind of rain that isn't really much moisture but just makes everything dreary. Makes me want to go back to sleep.....Kurt is dozing already! It is weird to have Sept. 11 be rainy -- 8 years ago, it was such a beautiful day. Like everyone, I have such vivid memories of that day. As most of you know, I was working a few blocks from White House at the time. After the attacks, the military established a perimeter around the WH -- my office was across the street from the edge of the perimeter. There were very courteous Marines with very large guns watching us all day long. How fortunate we are to live in a country where a military presence is a source of comfort and protection, rather than a indicator of oppression.

Ok, so chemo underway. Same old, same old. BUT. After chemo today, we head down to the University of Maryland to do the last test necessary to start the liver-directed treatments. Just as a reminder, Kurt is going to start on a therapy called SirSpheres. They are little beads with radiation in them, injected directly into the liver. The beads go into the blood vessels in the liver and the blood vessels around the tumors and emit radiation right to the tumors over about two weeks, as they breakdown. Here's a picture:



Kurt will get three doses - right lobe, left lobe, whole liver. The goal is to eliminate tumors entirely in one lobe of the liver. If that works, then the surgeons at the National Institute of Health that we met with believe that the rest of the tumors can be surgically removed. Which would be amazing and practically unheard of for cancer this advanced.

Anyhow, Kurt met with the UMD radiologist earlier this week to do a preliminary scan. That doctor was cautiously optimistic that Kurt would do well with the SirSpheres, because his liver tumors are so small. The beads only emit radiation over a small area, so the fact that the tumors are little improves the chances of killing the whole tumor, rather than having some kill around the edges but portions of the tumor untouched. Today, they will do some kind of trial run injection -- no radiation -- just to see how the injection will flow into his liver. I think it is sort of a mapping-type exercise. Then, if everything goes well, the first SirSpheres injection will be in 2-4 weeks.

Kurt will, ideally, continue with chemo during this process, although there may be more breaks and doses may change. So we are not totally sure what to expect, other than we are going to kick the crap out of these tumors!

In other news, did you watch the Health Care speech on Wednesday? It took Kurt and I about twice as long to watch it, because we had to keep pausing and shouting at the TV. Guess what government takeover of health care is NOT like -- car insurance. Not at all. Honestly, that was the single weirdest analogy I have heard yet. But, at least the Republicans managed to behave like sleep-deprived children. Am I the only one in favor of a giant Congressional mulligan? All of you just go home. Re-do. This isn't a partisan thing -- I am just tired of the entire Congress. Let's just start over.

Ok, better nip that rant in the bud before I really go off. We should be done here by noon and the off to Maryland. More later today on the outcome of that test.

8 comments:

mborto said...

A couple questions out of general curiosity. Feel free to ignore these if you're really busy.

1. Do the beads totally dissolve or breakdown into nothing or is something left in the liver?

2. Does the radiation emitted cause any pain or side effects? Can you go to work and do normally daily activities?

3. Does any of the radiation escape your body? Specifically could you use a geiger counter to measure the radiation in your urine? Because if you could that would be fantastic and maybe the only reason to buy your very own geiger counter:)

Best of luck with the meeting and again thanks for posting these updates.

Matt

Joe and karla said...

Yes, a few flaws to the car/health insurance comparison, the first of which comes to mind is nobody is FORCED to own or drive a car...

And thank God you and Kurt aren't going through this only w/ government health care to depend upon.

Did you see the Potomac this morning? What is up with all of that?

Love you and standing in that gap for you!
Karla, Joe and kids, including the now sixteen year old Queen.

Anonymous said...

So glad to get an update. looking forward to all this stuff working wonders...Please keep us up to date...... Yes, Jenn, we remember all the panic we felt on Sept 11... We were at your mothers.. we will never forget the feeling of not being able to reach you ...

Now, back to the present. And yet we have a leader that bows to the enemy.... we will let him be the first to sign up for his insurance coverage. I just hope he does not bankrupt the industry while I am still getting my pension.....

Anyway... have a very successful trip. will look forward to the answers to Matts questions. interesting...

Vicki said...

Thanks for the great info, Jen. I really appreciate it when you give those kind of details on the blog because I can never remember all of it when you tell me over the phone! This treatment sounds great. I'm anxious to see how it goes.

hum

Jennifer said...

I'm going to try to respond to Matt's questions, but Kurt may have to correct me on some points:

1) The beads breakdown completely over two weeks. But, the impact of the radiation remains. Specifically, Kurt can only do this treatment once. Otherwise, the liver gets too damaged.

2) The doctors have told us to expect Kurt to feel like he has the flu for about two weeks - sleepy, maybe a little achy, just that general ick feeling that makes you want to stay in bed. Otherwise, he should be fine.

3) The visual of some dude standing in the bathroom, waiving a geiger counter over the toilet is quite possibly the most ridiculous image ever. I will never get you engineers. ;)

We have gotten some mixed responses on the escape issue...which concerns me just a little. The company that makes the spheres recommends that spouses sleep in separate beds for the first week, but the doctors we have talked to have been a little less concerned about those sorts of things. But, the radiation is not supposed to damage nearby organs in Kurt's body, so it seems like the radiation is mostly contained.

I am hoping we will have one more consult with the doctors before treatment starts. If anyone has other questions, post them - it might help us think!

the uribe family said...

We're definitely thinking of you! Matt, Thanks for your questions.
Jenn, in response to one of your answers to Matt's questions - you said Kurt will only receive the treatment once. Does that mean once every month? Once, period?
Thanks!!
And thanks for keeping us all posted.

Unknown said...

You said beads.

Glad and hopeful

Jennifer said...

In response to above -

Kyla: as we understand it, it is once, period. But, I don't know if that assumes that people won't live very long anyhow. So, maybe it is really once every 10 years or something. But in terms of treatment right now, this particular procedure is a one-time thing, with three separate doses.

Ringer: Helpful ;)